July 12, 2022
1 min read

Kerala village raises Rs 18 cr for treatment of 9-month-old

People of Chorode village in Kozhikode district conducted a massive convention at Athafy auditorium in Chorode on Monday for taking forward the collection initiative….reports Asian Lite News

A village in Kozhikode district of Kerala has come together to collect Rs 18 crore to treat a 9-month-old Siya Fathima who is suffering from Spinal Muscular Atrophy (SMA).

Medicine for this rare disease has to be imported from the United States and a single dose costs Rs 18 crore. Zolgensma is a gene therapy medicine and a single dose will cure the disease.

Siya, the daughter of Siyad and Fazeela of Chorode started showing difficulties in moving, three months after she was born. The toddler was taken to the Malabar Institute of Medical Sciences (MIMS) where doctors diagnosed her as suffering from Spinal Muscular Atrophy (SMA). Subsequent tests at Bengaluru and Thiruvananthapuram confirmed that the infant was suffering from Type 1 SMA.

Siyad, the father of Siya, told IANS that the child is having difficulties holding her head up and is having trouble in eating and breastfeeding also.

People of Chorode village in Kozhikode district conducted a massive convention at Athafy auditorium in Chorode on Monday for taking forward the collection initiative.

A committee for fund collection is formed with Chorode gram panchayat president P.P. Chandrashekharan as Chairman and K.P. Abdul Azeez as convener.

ALSO READ: Panchayats in Kerala to decide fate of wild boars

Previous Story

Medha Patkar faces probe for allegedly misusing funds

Next Story

‘All-party govt should seek India’s support’

Latest from India News

Visa Interview Pause Nearing End, Says US

India is the source country for the largest group of international students in the US and Bruce’s comments will be closely followed there….reports Asian Lite News The United States said the pause

No Talks Till Terror Ends: India to Pakistan

The MEA’s strong response came at a time when Pakistan, pushed on the backfoot by India’s decisive Operation Sindoor, has suddenly started talking about its intent on having peace talks with India….reports

Accel Puts India’s AI Power in the Spotlight

Under the theme “Engineering India’s AI Advantage,” the exclusive, invite-only event will bring together leading AI founders, researchers, tech CXOs, policymakers, and global investors….reports Asian Lite News Global venture capital firm Accel

Rain Rules Roads

People walk with umbrellas, and vehicles move slowly as rain lashes Mumbai, Wednesday, May 28, 2025. (Photos from IANS and ANI)

Deshpande Set for England

IPL 2025 marked Deshpande’s return, and despite modest returns (9 wickets in 10 games at 10.63 economy), Mumbai bowling consultant Kulkarni backs him to thrive in England with the Dukes ball. There
Go toTop

Don't Miss

UK moves India from ‘red’ to ‘amber’ list

The change, announced by the Department for Transport, comes into

Ramadan brings cheers to Hyderabad after two years

Hectic activity was seen in markets and neighbourhoods as people