July 12, 2022
1 min read

Kerala village raises Rs 18 cr for treatment of 9-month-old

People of Chorode village in Kozhikode district conducted a massive convention at Athafy auditorium in Chorode on Monday for taking forward the collection initiative….reports Asian Lite News

A village in Kozhikode district of Kerala has come together to collect Rs 18 crore to treat a 9-month-old Siya Fathima who is suffering from Spinal Muscular Atrophy (SMA).

Medicine for this rare disease has to be imported from the United States and a single dose costs Rs 18 crore. Zolgensma is a gene therapy medicine and a single dose will cure the disease.

Siya, the daughter of Siyad and Fazeela of Chorode started showing difficulties in moving, three months after she was born. The toddler was taken to the Malabar Institute of Medical Sciences (MIMS) where doctors diagnosed her as suffering from Spinal Muscular Atrophy (SMA). Subsequent tests at Bengaluru and Thiruvananthapuram confirmed that the infant was suffering from Type 1 SMA.

Siyad, the father of Siya, told IANS that the child is having difficulties holding her head up and is having trouble in eating and breastfeeding also.

People of Chorode village in Kozhikode district conducted a massive convention at Athafy auditorium in Chorode on Monday for taking forward the collection initiative.

A committee for fund collection is formed with Chorode gram panchayat president P.P. Chandrashekharan as Chairman and K.P. Abdul Azeez as convener.

ALSO READ: Panchayats in Kerala to decide fate of wild boars

Previous Story

Medha Patkar faces probe for allegedly misusing funds

Next Story

‘All-party govt should seek India’s support’

Latest from India News

Gill: Bumrah Ready, Decision Soon

After a back stress fracture in the final 2024–25 Border-Gavaskar Test, where he dominated Australia, Bumrah was confirmed by Gambhir and Gill to play only three of five Tests due to workload

Maruti’s Global Push Breaks Record

June shipments hit 37,842 units, signalling robust global demand Maruti Suzuki India recorded its highest-ever monthly exports in June, shipping 37,842 units and marking a new milestone that highlights the company’s expanding

India Bats for Fairer Global Finance: FM Sitharaman

FM Sitharaman stated that we believe that optimal regulation fosters innovation and stability….reports Asian Lite News India supports reforms to the international financial architecture to enhance inclusivity and equity, including Multilateral Development

PM Modi Heads to Accra, Signals South-South Priority

The Prime Minister will then travel to Trinidad & Tobago from July 3-4, a country he said shares “deep-rooted historical, cultural and people-to-people connect” with India…reports Asian Lite News Prime Minister Narendra

White House Focus on India COMPACT

The Secretary affirmed the strength of the US-India relationship, highlighting implementation of the US-India COMPACT…reports Asian Lite News The US-India COMPACT—a comprehensive framework for bilateral cooperation—took centre stage during the meeting between
Go toTop

Don't Miss

Tourism could become key driver for New India’s rise

A detailed multi-pronged strategy is needed to ignite Indian tourism as

Nepal, India review bilateral pacts

Nepal and India signed an agreement on electricity trade as